Hello MY name is Matthew Alexander FloydI will probably do the RNS brain surgery for my generalized Epilepsy if the insurance will approve it I’m a little scared because I have never done a brain surgery before but I did do the VNS surgery so I have done one surgery only
And EPILEPSY is very hard so please be praying for me I have tried about 2000
Things to fix epilepsy and I have not got better yet sadly I feel like it would be so worth the surgery if it helps but I’m going to be sad 😢 if it makes me worse
I will be doing it at the Nashville TN Vanderbilt Hospital 🏥 Monday then I come back about a week later and do a second part of the RNS surgery because they want me to heal up from the bone marker surgery before I do the second so I need you to Pray for me From Matthew.
Matthew, I will be praying for you. I love you.
I’ll be praying for insurance to approve your RNS surgery. I’ll be praying for a successful surgery. I’ll be praying for seizure relief. You’ve already done so many hard things in your life, you can do this too! You are a seizure warrior!
Hi Matthew! Thank you for sharing your thoughts on RNS. I have a son with Doose Syndrome and I love to see your blog- my son is younger but maybe he will have a page like this one day! I will have to come back to read more from you.
Keep the writing going! And Good luck with surgery, fingers crossed with your insurance!!
Prayers to you, your family and medical team from Iowa! You got this 💪🏼
Good luck!! I can’t wait to hear your story! My daughter just had her RNS placed in November so I’m excited for another journey to follow!
Praying for insurance approval , a successful surgery and seizure freedom ! Great job on the blog – you are a brave epilepsy warrior to have come this far – never ever give up !
Thanks for writing your own thoughts and feelings on your surgery. Usually I only see parents of kids/teens with Doose and their thoughts, but it’s something special to hear it coming from you. Keep writing!
I’m praying for you Matthew, from Virginia, US! God only gives you what you can handle, and knowing you’ve tried 2,000 things, it sounds like you can handle a lot more than a little bit of surgery! You’ve got this dude! There are better days ahead, and keep documenting and blogging please!! You never know how your experiences and thoughts can change someone’s life.
Hi Matthew, thank you for writing your blog and sharing your experiences. You have an important perspective and we wish you all the best with your surgery! We will keep you in our hearts.
Hi Matthew! Thank you for sharing about epilepsy and your story. My teenager has a VNS and did a brain surgery in May. We are hoping to do DBS later this year which is a bit different then RNS. I know the worry and waiting before hand is so hard. We will be rooting for you!
Hi Matthew, my son has doose he is 4. We will be praying extra hard for you! Sending hugs and blesses! Life may be hard but know You are Brave, You are Strong and You are Great!
You are a tough kid and have been through a lot just like our 10 year old son, Tate. We are all pulling for you and praying for you in our Doose Syndrome support group. Stay strong and keep writing! You will prevail! 💜💪🏻
I’m praying extra prayers for you to be able to have this surgery and that it helps you so much! You have been through a lot over the years, and it’s about time for things to get better. We love you!
Hi Matthew! I wish you all the luck and success in the world! I have a daughter with Doose as well and she will love to follow your blog. She is younger but maybe she will have a blog like this some day to share her story! Keep kicking butt, buddy!
Matthew, you are a strong young man. I hope you can feel uplifted by the countless prayers that are being said for you, your family, and the doctors. You are a real inspiration!