A type of seizures for me I call it a choking seizure it feels like a bully poured poison down my throat and it a rising feeling in my chests similar to anxiety. I also have a pinging noise I hear sometime that I think is a seizures because it sometimes makes me feel bad and it is very annoying. My worst type of seizure is a tonic clonic seizures it feels like my brother and family when they get close to me at night it feels like I’m getting blamed for my health problem like it’s my fault. And I also have a type of seizure that feels like CPR like I’m getting crunched to the point I feel choked to death and I have to take I lot of medicine and not over do the caffeine and unhealthy food. I don’t recommend dairy and soy for me leg jerks just tickle a little but they are not painful at the worst they will do is give me a migraine headache. And same feeling with hand jerks and I also have it where I get stiff and my hand starts to shake by itself and my temperature gets colder. I have back to back seizures that I have seizures for hours unless I take the rescue medicine and after two or three days my anger gets bad from the rescue medicine. Sadly I have to go to the Dr a lot and get blood test and stuff like that done and a iv to put me to sleep. For this second Surgery with the RNS I’m very happy I will probably be better. But I’m also nervous I will not get better or get worse. Please be praying for me I need God to help me.
Hi Matthew,
It is truly heartbreaking for me to read your description of seizures because my son also had seizures as a younger child. Thank you for sharing your story because I know it will help others. Best of luck on your surgery!
Dawn
Hi Matthew,
I appreciate your description of seizures. I have a young son, who isn’t able to describe to me. I value your insight! I wish you all the best, and a speedy recovery. Rooting for you!
Thanks so much for sharing your story. It is very brave and I love your blog posts. Wishing you all the best on your surgery and praying for seizure freedom for you soon!
Thank you for sharing your story! It’s helpful to hear and understand what seizures feel like for people! My daughter has epilespy and had felt like anxiety and seizures feel similar at times. I will send prayers to you for this surgery!
Hi Matthew,
I am praying for your surgery tomorrow! You are so brave! Thanks sharing your story. I don’t have epilepsy but my son has and it is SO hard to see his struggles. My heart goes out for you.
Much love,
Fe
Matthew,
I am sending you prayers and well wishes for a successful surgery and quick recovery!! I’ll check your website for updates.
You are BRAVE. You are STRONG.
Hey Matthew, I will pray for you that you will be soon seizure free. Trust the God you believe in and yourself. You are one strong personality. lots of strength to you and your family… God bless you and your family….
This is so helpful to read as my son with seizures isn’t able to describe them. I know all seizures are different but still helpful to read about your experience!